Study Information
Locations
Not Specified
Clinical Trial FAQs
Information for patients and study volunteers, including frequently asked questions.
Description
The purpose of this project is to investigate how PAMF patients deliberate, decide, and act upon genetic counseling and testing to determine their personal risk for breast and ovarian cancer. An additional goal is to map the patient experience of those who test positive for genetic mutations and examine their surveillance and risk reduction practices. The outcomes of this project are intended to provide in-depth information on patients’ experiences and decision-making around genetic counseling and testing in the newly created PAMF clinical genetics program.
Funder
Palo Alto Medical Foundation
Related Studies
Lung Cancer in Never Smokers: Incidence, Risk Factors and Molecular Characteristics in Asian American, Native Hawaiian, and Pacific Islander (AANHPI) Women
The goal of this project is to document incidence and risk factors for lung cancer by smoking status, among AANHPIs, focusing especially on female never smokers.
Investigators: External PI, Principal Investigator, Su-Ying Liang, Ph.D.
Using Electronic Health Records to Understand Pathways of Breast Cancer Screening and Care
To examine how EHR data can expand understanding of breast cancer pathways--screening to dx and tx.
Breast Tumor and Blood markers for Molecular Diagnosis of Breast Diseases and Monitoring of Breast Cancer Treatment and Follow-up
This study seeks to analyze of DNA and RNA isolated from donor tissues for molecular, biochemical, immunological and/or histopathological analysis.
Latinas' Experiences of Breast Cancer Treatment in Santa Cruz County
This study will use in-depth interviews & structured surveys to identify the underlying factors shaping low-income Latinas' breast cancer treatment experiences.
Bay Area Breastfeeding Experience Survey (BABES)
Large ongoing survey, which follows women in the last trimester of pregnancy until they stop breastfeeding.
Primary and Secondary Prevention of Osteoporosis-Related Fracture: The Use of DEXA and FRAX Results in a Community–based Practice
This study explores whether physicians recommend guideline-based interventions reflecting results of DEXA & FRAX risk scores provided w/ DEXA results.
Measuring Real-World Breast Cancer Care
Goal is to develop standardized questionnaires to obtain info from pts concerning their preferences on and evaluation of their breast cancer care.
Improving Outcomes for Breast Cancer Patients: A PAMF-Stanford Research Collaboration
This study examines the "trajectories" of breast cancer patients from diagnosis through treatment within and across these two delivery systems.
Investigator: Su-Ying Liang, Ph.D.
Towards an Understanding of the Influence of Significant Others on Breast Cancer Patients’ Treatment Decision Making
The goal of this ethnographic study is to describe the influence and impact that others may have on breast cancer patients’ clinical decision making.