Description
The purpose of this project is to investigate how PAMF patients deliberate, decide, and act upon genetic counseling and testing to determine their personal risk for breast and ovarian cancer. An additional goal is to map the patient experience of those who test positive for genetic mutations and examine their surveillance and risk reduction practices. The outcomes of this project are intended to provide in-depth information on patients’ experiences and decision-making around genetic counseling and testing in the newly created PAMF clinical genetics program.
Funder
Palo Alto Medical Foundation
Research Topics
Related Studies
Cancer Liquid Biopsy Monitoring Study
A study testing the clinical utility of liquid biopsy for monitoring Sutter patients treated for metastatic melanoma or lung c
Investigators: Mohammed Kashani-Sabet, M.D., Deepti Behl, MD
COVID-19 Impacts on Cancer Care Management, Patient Experience and Care Costs
Project goals: To understand impacts of COVID-19 on cancer care management (detection, diagnosis, treatment), pt-reported experience, and cancer care costs.
Investigators: Monique de Bruin, M.D., MPH, Cheryl Stults, Ph.D., Su-Ying Liang, Ph.D.
Stupski Serious Illness Program Evaluation
Evaluate palliative care projects at seven healthcare organizations in the SF Bay Area.
Investigator: Sylvia Sudat, PhD
Impact of COVID-19 on Cancer Care Management
Study will enhance understanding of cancer care management due to COVID-19.
Investigators: Monique de Bruin, M.D., MPH, Su-Ying Liang, Ph.D.
Coverage, Price, and Reimbursement for Multigene Tests for Cancer and Related Conditions
Our objective is to examine “coverage, price, and reimbursement” for multigene tests broadly and for cancer-related indications.
Investigator: Su-Ying Liang, Ph.D.
Improving Cancer Care
Project will provide information about referrals to palliative care and way to enhance goals of care discussions for patients diagnosed with stage IV cancer.
Investigator: Su-Ying Liang, Ph.D.
Multilevel Study of Lung Cancer Screening Guidelines Implementation (MUST)
Provide insights into preventive services for lung cancer. This research will contribute to the concurrent progress in lung cancer screening with LDCT.
Investigator: Jiang Li, Ph.D., MPH
Implementing Universal Lynch Syndrome Screening Across Multiple Healthcare Systems: Identifying Strategies to Facilitate and Maintain Programs in Different Organizations Contexts
To describe and explain variations in Lynch syndrome (LS) screening implementation across healthcare systems and create a toolkit for implementing LS screening.
Investigators: Su-Ying Liang, Ph.D., Monique de Bruin, M.D., MPH, External PI, Principal Investigator
Lung Cancer in Never Smokers: Incidence, Risk Factors and Molecular Characteristics in Asian American, Native Hawaiian, and Pacific Islander (AANHPI) Women
The goal of this project is to document incidence and risk factors for lung cancer by smoking status, among AANHPIs, focusing especially on female never smokers.
Investigators: Su-Ying Liang, Ph.D., External PI, Principal Investigator
Using Electronic Health Records to Understand Pathways of Breast Cancer Screening and Care
To examine how EHR data can expand understanding of breast cancer pathways--screening to dx and tx.